This has been a week of independence for Michael. He has had to do a lot on his own while I have been at work, he has done a magnificent job! Michael is still quite weak, he has full body muscle aches and most unfortunately, healing sleep seems to completely elude him. Its frustrating to see him go night after night without sleep. Can I say that Neuropathy STINKS!?! I can't comprehend why nurses/doctors can't provide him relief or sleep. Michael has been given sleeping pills, Benadryl, Tylenol PM and not one has helped! He literally NEVER fell asleep last night, he was told by a Transplant nurse to take two of his sleeping pills instead of 1 and it made things worse for him. Today I went to our local drug store and the Pharmacist suggested Melatonin so we will be trying that tonight along with a body massage given with Tiger Balm. Yesterday he woke up with a rash that covered his face and ran down his neck and to his upper torso. We called the Transplant Clinic and we were told to stop taking the Bactrim and that they would call in a new anti-biotic prescription, Michael has to take this medication for at least a year to prevent any lung infections that he is now more susceptible to because of the immunosuppressive drugs. I called our pharmacy to check on the status of the new medicine and I almost crashed my car when they gave me the total for a one month supply, $1550. Actually, my mind is still spinning from that news. I had to call the Transplant Clinic once more to be certain that this was the correct medication and sure enough, it was. I asked the nurse how were they so sure that the Bactrim was to blame for the rash, she said they aren't 100% sure but that is what the Doctor suspects it is, I hope that his educated guess is correct because if its not, its costing us $1550. On a lighter note, Michael's fainting spells are over and he is OFF blood pressure medicine and maintaing a healthy BP! How great is that? Joe's kidney is definitely doing its job! Our daughter Jill drove Michael to the lab to have his blood work drawn on Monday and Wednesday morning, those labs have come in and he is doing outstanding. Kidney is working great! YAY! This morning Michael drove himself to the lab! Wow, right? It was the first time he had driven since November 7th. Its thought provoking to contemplate how something as mundane as driving can be such a huge hurdle to jump. Nice jumping Michael!
Rash due to Bactrim?
Incision is finally closing up!
The pups were so excited to see Michael they cried!
43 Days Post Transplant. Moving slowly but moving in the right direction. You are not alone, and neither are we.
God's Blessings, Lilly :)
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